Three months home and back to the hospital for Hunter to have the Norwood/Glenn surgeries combined. June 11, 2009 was filled with mixed emotions. We started the day at 6:00am by handing our son back to Dr. Ilbawi. After his seven hour surgery, two extra hours to stabilize him, and a fourth chest tube inserted for drainage we were finally able to see him. The day became the longest day for Hunter and truly showed what a fighter he is.
Four hours out of surgery and much communication between doctors and nurses the ER/OR team was called into Hunter’s room and his wing of the hospital was closed down because he was internally bleeding and they had to go back in through his chest to find the bleeders to save his life. After five long weeks of many ups and downs we were finally sent home.
During a routine heart echo at 11 months of age, we were thrown another curve ball. His cardiologist looked at us and said that he had not been able to see his left pulmonary artery (LPA) and he needed a CT scan. We prayed for his LPA to be hidden behind another organ, however we weren’t so lucky. His aorta had become so enlarged that it was crushing his LPA and he needed yet another surgery to correct this issue.
As of July 18th, 2011, Hunter qualified for the Fontan surgery. The surgery resulted in major complications which resulted in a whole new battle for the Darnell Family.